Monday 17 August 2015

Chiari Warriors for Medical Research


Chiari Warriors
An anthology from Paul Anthony Associates


This blog is a story in itself - the story of fundraising for medical research into the condition known as 'Chiari Malformation' - a rare condition in the human body that requires neurosurgery - brain and cranial surgery following an MRI scan. This blog is part of a wider information package for fundraisers - as well as book readers and charity supporters - as we do our best to 'conquer chiari.'

Please read on and see how our fundraising is taking shape.


This is an anthology of short stories by 18 authors from across the globe - the UK, the USA, Canada, and Europe - The tales they tell are both non fiction and fiction. Many are based on real life experiences. Others are based on vision and a wondrous source of imagination that these very special authors bring to their readers. Some of the stories they tell will make you cry, others will make you laugh. But some of their writing will actually terrify you when you realise that some of the accounts they recall are actually true stories from real events in their lives. Indeed, there's something for everyone here: tales of love and war, of honour and disobedience, of hate and humour, of desire and desperation. They have produced a roller coaster of emotion on their journey to complete this anthology. It's a book to savour and enjoy, page by page. Above all, this anthology contains the true story of a young boy who suffers from Chiari Malformation - a condition for which there is currently no known cure. The work itemises the condition and the problems associated with this horrible human condition. Written by the self-styled Chiari Warriors, the book seeks to raise funds for health practitioners and research analysts. Accordingly, proceeds from the sale of this work will be donated to the Birmingham Children's Hospital Research Unit (a registered charity in the UK) in order to fund dedicated research into this life-threatening condition. The results of this research are shared across the globe between UK institutions, the Chiari Institute in New York, and elsewhere. If you do nothing else today, download this one to savour whilst doing something worthwhile for the children of the future.



The Clinical Research Unit at Birmingham Children's Hospital
Setting up our fundraising activities with
Mr Stuart Reynolds (CEO. BCH Charity and Mr Guirish Solanki, Neurosurgeon)

Some of our anthology authors from Cumbria presenting a
signed copy of 'Chiari Warriors' to Daniel following his second compression surgery
and long term subsequent recovery. Not a book signing event - a very successful fundraising
event in Carlisle - for Chiari research

One of over 50 prizes auctioned at our 
fundraising charity drive
A Harlequins Rugby Shirt
signed by all the team.
(DONATED BY MATT SHIELDS, HARLEQUINS)

Ryan Dollard of ITV Border News compered
the charity fundraiser = he is running the auction in 
the above photo
At the above event, held at the Auctioneer, Carlisle, 
on 4th September, 2015, we raised the sum of £4,138.62.

NB: We are continuing to raise money from various fundraising activities. So far, we have donated over £12,500 to the Birmingham Children's Hospital, Chiari Research Wing via things like a 'Laser Quest' night at the Aztec soft play center in Carlisle,  sponsored runs and sports activities, talks on the publishing process to various book clubs and libraries, policing and counter-terrorism talks/lectures by myself to organisations perhaps titled 'Masonry, military, police, WI, pensioner groups, social interaction groups,' In addition, private donations and anonymous donations have been made. Some donations have been made directly from the family to the hospital via personal links on behalf of third parties, various events at the Nags Head public house in Brampton, Cumbria, and elsewhere.... we're gathering pennies to donate pounds....

Click on Paul Anthony for access to his website and copies in print and Kindle

Before you download this anthology for our charity drive, come and meet some of my awesome  author friends from across the globe. Each one has contributed to this charity drive....
 the best of the best, each and every one of them.

You'll find all their books in the amazon kindle store. 



Mike McNeff, Arizona Highway Patrol, SWAT, Special Forces,
Deputy Sheriff, Head of DEA, Bestselling author of the GOTU series
https://www.amazon.com/Mike-McNeff/e/B006ZD3JFO
Amy Metz, Lousisville, Kentucky, 
first grade teacher and best selling author of the
Goose Pimple Junction muder series 
 https://www.amazon.co.uk/Amy-Metz/e/B008NA07X4



Wayne Zurl, America

C C Champagne
Canada

Carter Novels
America

  
Marion Tervitt, Scotland
Edward Lightfoot
England


Dave Miller
England
Joan Cook
Spain


Jean Reinhardt, Republic of Ireland

Sandy Kilpin Miller
England


Ray Gregory
England
Steve Sharpe ((with Ben)


Roger Price, England


Paul Anthony with Meg Johnston

 Come and meet some of our great supporters
Matt Shields
Harlequins Rugby Team
presenting his Wembley shirt to our Chiari Sufferer


Steve Borthwick - ex England Rugby Captain and now
Forwards Coach for Japan Rugby Team, with his team mates
sending a message from across the Atlantic
'FIGHT CHIARI'
(As an update, Steve went on to become forwards coach for the England rugby team)

What is Chiari?
Watch this - all you need to know about Chiari

Chiari Awareness Video




UPDATE 2021

Daniel is now 19 years of age and studying at Carlisle College. He has his own business as a videographer and hopes to secure employment in the film industry behind the camera. A link to his website can be found in the listings on the righthand side of the screen. Dan will never be cured of Chiari but he is fit and well and has had no recent setbacks.

Thanks to everyone who donated, bought a book or supported Dan, the hospital, and those who challenge Chiari every day of their life........ Thank you, Paul Anthony